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Welcome to the Hepatitis Family Guestbook

Thank you for visiting our pages.

My wife, the ANGEL that she is went on line and found your site. She suggested that I check it out. It is somewhat of a comfort to know that the support of many is available. When I saw "HEPPERS" I laughed that laugh that only one who knows knows. Glad you are here. Hep-C 10+, starting tx next week. I'll be back to keep you updated, if only for my sake and sanity.
Douglas

a family member was dx with Hep c looking for info
Ellie Cameron <mar2145@aol.com>

Hepatitis A
Colleen <ccmann@bellsouth.net>
Dallas, GA Paulding

I am getting the emails and am reading them faithfully. I am way behind so I have taken the *lurk mode* to catch up. I have HCV due to a bad blood transfusion in surgery at the VA Hospital in San Antonio, TX, in 1987. I currently am feeling well and am somewhat bewildered about the treatments available on the market today. I am here to learn and to share.
Sally Jo <mrsdhandsome1@aol.com>
Terre Haute, IN USA

I really enjoyed the Hepatitis family site, and I am really learning a lot from all of your experiences. I have had Hep for almost 20 years now. I found out by donating blood in 1995, I have very few symptoms at this time, But I am always tired and have achy joints, I have Rheumatoid Arthritis (probably from the Hep my doctor says). I have never done treatment, but currently I am considering doing that. It is great to find other heppers who are experiencing the same things I am.
Rose <Crazybabi10@aol.com>
New Jersey

I am so happy to have found this list. I look forward just sharing with each other our experiences, etc. I was diagnosed over a year ago...over 1 million. Went on Rebitron combo brought it down to 32,000 (after a year). I just want to get rid of this I really do. I can't continue knowing it's in my body. They must find a cure one day and I hope that day is soon. Thanks for having me as part of the list. Cosy
Cosy <Cozzzyyy@aol.com>
Baltimore, Maryland

My name is Julie Cox. About 18 months ago I became to sick to keep up with any list so I signed off. Since then my husband left me for an online romance and I became even sicker.
My doctor in Indianapolis referred me to Jackson Memorial Hospital on the University of Miami Medical Center Campus. They accepted me into their transplant program so I decided to relocate to Florida.
I wouldn't really consider myself a religious person but extremely Spirited. At that time I gave all my problems to God and concentrated on manifesting a new liver and gave her a name "Hope." I then proceeded to do a ongoing Ghostdance for the next 11 months. It was not always easy to remain positive at this trying time in my life but I did the best I new how.
On Dec. 1, 2000 I got a call from the hospital with the long awaited news that "Hope" was ready for me if I could be there within 4 hours. I arrived at the hospital at 5:00 a.m. and was in surgery within the hour. My First surgery was 19 hours long. On Dec. 3 my aorta burst and I went into another emergency surgery for an additional 19 hours. On Dec. 22 I was scheduled to be discharged when they discovered I was totally septic and full of infection and went into another emergency surgery. After 16 hours on the table I woke up. It was the only thing in my life that literally brought me to my knees. After a short to the point disagreement between the surgeons and anesthesiologists they decided to stop the surgery and didn't take the time to close my wound. They had given me up for the second time in 22 days. (They just didn't know my relationship with Spirit) I knew everything would be all right and eventually it was. I was discharged from the Hospital mid January with a hole in my chest the size in my hand. I could literally watch the food move through my intestines and view of my new gift "Hope." With help from visiting nurses and the magical invention of Aquacell it has now healed. I am sharing my story not any way to scare any one from accepting the gift of new life but to encourage all of you who accept the challenge. My case was extremely rare and most all liver transplants are achieved in under 10 hours and patients are discharged within 10 days of surgery. If a person can except all challenges positively and gratefully they can endure.
Today I live on Anna Marie Island in sunny SW Florida and embrace each day as they come weather good or not so good. For the most part life is good! My biggest challenge is divorcing the man who left me when I needed him most and this seems to be so minor at this time.
I hope this will encourage all of you to keep positive and embrace all life as it comes. There is always Hope!

Love and Light

Julie Cox <seajuels@aol.com>
Holmes Beach, Florida USA

So glad to find this site - I am on PEG-INTRON - It is not out to the public yet, but the Hep C is going so fast - Doc told me I may have a year left - trying to get on transplant list and it is very tough - Small town - the doctors here do not even know the qualifications - We just started a support group - so far, so good - thank you for this site !!!!!
Barbi <windsister@earthlink.net>
Peshastin, WA USA

have known I have Hep c for a while now. a month ago was told viral load is at 750000. told I am genotype 1-least responsive to treatment!?! dr. seems unimpressed with condition-no real advice from him-alt levels o.k.. what next?
peanut <pea-nut@lvcm.com>
Las Vegas, Nev.

Hi Joe, excellent web site.
Paul Bynon <pabynon@yahoo.com>
Lansford, Pa. USA

I need someone to talk to ASAP. Very depressed
Janet Schexneider <Jannewilms42@aol.com>
Eunice, Louisiana USA

HI,
My fiancé has been diagnosed with "the dragon". At this moment he is to see a specialist in April. Your positive thoughts and prayers are much needed. I truly believe in a "HIGHER POWER". He has drank for most of his life, until now. Five days and no alcohol, let's pray that lessons will be learned and the dragon will be slayed. GODDESS/GODS bless you all in your journey . My prayers are with you all.
LINDA <Lindazhorizons@aol.com>
SC USA

Living, Loving, and Hoping with my chronically ill Hep c spouse
Renia <monibags4U@aolcom>
Cincinnati, Ohio USA

hello,

I am writing to let all of you know that a miracle happened to me yesterday. I've been doing Rebitron for 6 months and loathing every minute of it. the gastro's office called yesterday to say the virus is now at an undetectable level and I can stop! my load had been extremely high when I started. everybody, please, don't lose hope - miracles do happen!

keep the faith!

My mother was diagnosed w/Hep C one year ago this month. She is an alcoholic & it's killing me up watching her destroy herself. I don't understand but my faith in the Lord is getting me thru. I can't wait to look into all the great information here, share it with my mom & hopefully open her eyes.
Sharon <msfry@netzero.net>
Houston, TX

HI I HAVE HEP.A.B. FOUND 1 YEAR AGO I HAVE HEP. C I WAS SCARED TO DEATH DOCTOR SAID I HAD TO START COMBIO TREATMENT [ WAS SICK ,HEADACHE ,TIRE ALL THE TIME WORK EVERYDAY ONE POINT I THOUGHT I WAS GOING TO LOSE MY OF 30 YEARS SHE STAY BY MY SIDE TREATMENT DID NOT WORK JOIN A SUPPORT GROUP BEST THING I DID CANT BLAME NOBODY BUT MYSELF I DID A LOT OF DRUG NOW WAITING NEW DRUG COMING OUT IN 2001 I READ A LOT OF STORES I KNOW HOW YOU ALL FELL ALL I CAN WE HAVE TO KEEP THE FAITH GOD BLESS EVERYBODY WITH THIS VIRUS HARRY
HARRY D FRIBOURG <HCF1970@MSN.COM>
CLIFTON PARK, NY U.S.A.

I'm doing the combo and have a real desire to involve myself with others, talk, ask questions I have so many, send offer love and support.
DANA LEIGH MAYO <gvtwynow@hotmail.com>
DANA POINT, CALIFORNIA

Thank- you all for being here, and who you are. God bless you. I don't write, But I do enjoy reading your e-mail. I feel like I know a lot of you. Connie
connie hodel <conniehodel48@home.com>
Portland, Oregon

Happy New Year!

Your site has won our "Personal Site Award" and the "Inspirational Site Award".

You can pick up your awards (2) and copy and paste the link code to put this on your site. Link code should be used along with the image. Go to:

http://objectivemedicine.com/ourawards.htm

Congratulations! Happy New Year and keep up the good work.

Anna Rockenbaugh,
ObjectiveMedicine.com

Anna Rockenbaugh <getbetter@objectivemedicine.com>
usa

hi ,happy new year to all my Hepper friends. I'm a non responder, three trials of Intron a. HCV since 69. paying for "that" party now. Don't despair children,31 years I'm still here. god bless you all. I love all you dudes. tom a
Thomas Augugliaro <Handler8@aol.com>
mastic beach , NY USA

I need 2 know all that I can
LOIS <loispeace09@cs.com>
Davie, fl u.s.

Hi, I have enjoyed visiting your site many, many times. You have so many neat categories to browse through. I love the "Hepper 12-Step".
For several months now I have been building a database of hepatitis resources. I have found your site to be very helpful and full of useful information. The Hepatitis Database-Directory of Web Resources has nearly 1000 hepatitis links, 12 categories and 80 subcategories. Please visit the database to see where I placed your site in the directory and let me know if there are additional categories your site should be listed in. (Some categories are: Hep Culture, Online Hepatitis Videos and slide shows, Humor & Fun, Medical Info, Publications & Newsletters, Hep Webmaster Tools, Support Groups, Awards, Surveys, Activist, Hep Online Shopping, International Sites, Alternative Medicine, Recipes, Hep Art. It goes on and on.
This database-driven directory is dedicated to all those who suffer from liver disease and to those searching for a cure for hepatitis C. Our fight against hepatitis C is one that is of monumental importance as this epidemic is growing. Prevention and control, education and research are the priorities of those who fight this battle. Faith and hope keep us focused. We must strive for the day, when this disease does not have to be fatal to ANYONE!
I found researching the online resources for hepatitis to be humbling and inspiring. There is a vast amount of material available about hepatitis from many different sources. There are numerous sites rich with useful information and dedicated individuals who strive to make some sense of this elusive, complex disease (HCV). The perspectives vary, from alternative to conventional, to educational and humanitarian. There are activists, entertainers, scientists, doctors, patients, and people from all over the world that have something to contribute to the puzzle and the quest for a cure. The goal of this directory is to bring all this work together and facilitate communication between these groups and resources. Another goal is to create a place where information can be found quickly and easily, where we can stay abreast of what others are doing.
My compliments to you and your work, your site is a great contribution to the efforts being made to educate and assist those who have this disease. Thank you.---- Anna R
Hepatitis Database
http://www.objectivemedicine.com/dbsearch.htm

Anna <getbetter@objectivemedicine.com>
USA

I found out in 96 I had Hep C, at first I thought It was a good thing, because It wasn't Hep A or Hep B. Then I went to the Dr. and what a shocker! I became very close to my heavenly Father, and prayed for life-and to have a healthy body. I live alone, and felt like I was the only one in the world with this awful thing eating me up. Just this summer,2000, I found Hank Ray Brian, I called them my Angels, because they understood me reached out their hearts, and now I have All of you, My Spirits are So Hi. And I see so much beauty in simple things, the World is full of Beauty, so precious & dear. God bless Us All, Your Hep C friend, Always, love, Cheri
Cheri Coles <cheersea@webtv.net>
Portland, Oregon USA

A member of our E-group (HepCWebWarriors) has selected your site as a "stellar" hepatitis link. The sole purpose of our group is to share great hepatitis sites that we find, use and enjoy. We post the site suggestions and them to a permanent list. Thank you for your excellent work. If you would like to find out more about our group, please visit the website:
http://www.objectivemedicine.com

Anna Rockenbaugh <getbetter@objectivemedicine.com>
Glasgow, KY USA

I was just diagnosed this summer. I felt shocked, how could this happen? But it's like Karma, cause and effect. I live more impeccably and with more purpose like life is a wonderful taste to be savored. I feel more spiritual now than I ever have in my life. I find my faith in Buddha helps tremendously. In a way having Hep. is a good thing, that sounds weird, but I feel life is a lot more important now than ever.
Barry Greenberg <Rainbear@aol.com>
Portland, OR USA

I was diagnosed one year ago and I was shocked. Since that time I went on meds, stopped (side effects) and now my viral load has tripled. I loved the 12 steps. I can relate more now (I am currently in AA). Thanks for the wonderful site!!
Vicky <Viclea227@aol.com>

I am in recovery from alcohol and drugs so the steps make things very clear for me. I was diagnosed one year ago, started meds, then stopped (side effects) and I just found out that my viral load has tripled. I've been pretty freaked out and feeling out of control. Oh well, back on meds.......Great site! Thanks!
Vicky <Viclea227@aol.com>

I was diagnosed with Hep C after a routine physical. I didn't have any symptoms or any clue that I had the disease or what Hepatitis C was. I am now in my 4th week of treatment with interferon and ribavarin and the headaches and nausea are horrorendous at times, so much so, that my doctor prescribed an anti-nausea medication for me. So far, I have been able to keep working, but I am so completely exhausted all of the time. However, I'd rather put up with the side effects if it mean I have a chance of being cured..however slim that chance is.
Shelle <shelvis3@aol.com>
California USA

I WAS DIAGNOSED WITH HCV. I HAVE TRIED TO ACCEPT IT. TO ALSO DEDICATE MORE TIME TO MY KIDS. MY 1ST HUSBAND DIED OF HCV 3YRS AGO. I AM PRESENTLY MARRIED. DON'T KNOW IF MY PRESENT HUSBAND HAS IT TO HE WONT GO TO THE DOCTOR. HE IS PROBABLY SCARED TO FIND OUT BUT I HAVE A LOT OF SUPPORT FROM FAMILY. HOPE TO FIND SOMEONE ELSE THAT I CAN TALK TO REGARDING MY FEARS I DON'T WANT TO WORRY MY FAMILY ANYMORE THAN I CAN HELP. ANYONE FEEL FREE TO WRITE TO ME I WILL BE LOOKING FORWARD TO IT. AND THANK YOU FOR THIS WEBSITE PAGE ITS GREAT..
LUPE MOLINA . <gabbby pacbell.net>
Fontana, California

hi,
I was diagnosed with Hep C this summer after my boyfriend was found positive. I am not sure though if I had it all along or if I got it from him. I guess it doesn't matter anyway. I am 31 and the mother of a 6 y/o girl and am in my senior year of college so interferon therapy really scares me since I have to be highly functional. my blood work is within normal ranges for the moment so all is well for now.
Cassandra <cfrie69825@aol.com>
Staten island, new york

HELLO, I HAVE HAD HEP C SINCE I WAS BORN (19 YEARS) AND I FOUND OUT THAT I HAD IT NOVEMBER OF 1999. I AM ON MY 6TH MONTH OF TREATMENTS AND STILL TRYING TO FIND A GOOD WEB SITE THAT HAVE A LOT OF PEOPLE WHO HAVE IT SO I DON'T FEEL SO ALONE... THANKS ALLOT FOR YOUR SUPPORT..
MELISSA LAKE <MISSA_ANN2000@YAHOO.COM>
AURORA, CO

Thank you so much for your wisdom and your kind and loving approach to this illness. You are much kinder than my family members. They evidently just think I am as right as rain..... and my disease is a form of attention getting behavior. Thank you for caring. Michelle
Michelle Pizarro <nutshell99@hotmail.com>
Mapleton, Iowa USA

thank you for making all this information available to those of us who are trying educate their doctors.
Kim black
Oregon USA

Finally something I can share with friends and family on this Spiritual Journey!!
Franni <fshaughnes@aol.com>

I will be ending combo treatment in June. Will be looking seriously at Hepatico after. I thank the family for all the support and friendship.
Dennis
Dennis Huber <dhuber@ttlc.net>
Kingston, NH USA

Thank you so much for your work into making this page, for your inspiration, for your courage and for your love. It is a great encouragement to know that someone else knows how I feel, and that you aren't sitting around sitting sorry for yourself, but instead you are encouraging others. Thank you so much.
kb
Brisbane, Queensland Australia

Very Nice!
Cassandra <ccain@juno.com>
Denver, Colorado

Joe,
What an inspirational site. It is such a joy to have a place to go to really get in touch with the meaning of our inner self and the love of God.
Thank you for being here for us....You are the best...
Diane Kuhnel <diane214@webtv.net>
N.J. USA

What a website! The best I've seen in the entire hepatitis community.
Metatron <metatron2000@worldspy.net>
Maui, Hawaii USA

Hi Just wanted to say this is a Great sight and there seems to
be so much love here. Bless you and everyone who
helps you. I hope someday someone will find a cure for this
or maybe they have and we just don't know about it yet.

Ray Norman <rolden@uswest.net>
Portland, Ore U.S.A.

Will make decision on Mon. 12/13/99 to start combo. Study is 10mill every day for 2 weeks 5mill everyday for 2 weeks then 3mill 3x week plus riblavin 1200mg. Any thoughts greatly appreciated. thankx, Norm
Norm Szatkowski <NSzatkowsk@aol.com>
Buffalo, NY USA

Greetings, Joe.

Some strange frame effects on displaying your pages. I was impressed with how love is the common thread in your web site. It is what we share, and is the key to survival, isn't it?

Great web site, and thanks for going to the trouble.
John and Matti <john-kirk@lineone.net>
Blackpool, Lancashire United Kingdom

Nice site. Works well. Thanks for offering support to those of us that need it.
Bill <bacarson@vcn.com>
Wyoming

Thank you for the healing love, courage, wisdom, and strength you give here. May it all come back to you a hundredfold.
Brenda Bush <brrbush@yahoo.com>
Tacoma, WA USA

Just recently found out I have Hep B&C ,so you can imagine how many sites I'm going into. I've bookmarked yours. THANKS!!!!
JULIE <Allcrechrs@aol.com>
Dover, DE. U.S.A.

Am on a Hep C list and followed a link to here. Has had HCV for over 13 years, flunked the Intron-A treatment and just looking for answers. You all help people. Don't stop. With you...cedesue
Celia <cedesue@concentric.net>
La Grange, Ca. USA

Keep up the great work! Looking forward to the updates. Thank you for being involved in the education of others. JUNE
June Cicala-Short, PA Co-Chair, USHA <jcshort@datab.net>
Blairsville, PA USA

smilin sandy gave me your address since we are neighbors I thought I'd drop by and say hi.
Gary Neff <gary@gneff.com>
langhorne, pa USA

It's encouraging to see others with HCV doing something so valuable with they're time.........God bless all....Thanks, K
Keren <waitingpatiently99@yahoo.com>
Cincinnati, OH USA

You have a great web-site. It is always good, to be here, and find info.- rasheeda
rasheeda tate <rasheeda@gmx.net>
munich, Germany

I have almost completed the combo treatment and my doctor tells me I am in the norm after only 4mos it can work with a lot of support that I received from my husband and doctor.
Diane in Portland, OR <bartdiane@earthlink.net>
Portland, OR USA

I'm always looking for info
Tracy <H7958@aol.com>
Bridgewater, NJ USA

thanks for sharing, Joe! This is a beautiful, relaxing website... Be Well, Lyric
Lyric Rain <lyricrain2@aol.com>
New York, NY USA

Hi Joe,
Thanks for the info and insight. I have just been diagnosed HCV positive.
I'm working on accepting it. We all need to fight this dragon.
Jim Osborne <josbo@ziplink.net>
Fitchburg, MA US

Thanks for being available to us. I am a non responder to all treatments. I have C
pam westbrook <pamsplace99@yahoo.com>
carthage, Texas US

great web site, informative, I'm just a little overwhelmed with my recent Hep C positive. Thanks
Joann Torgeson <torgeson@worldnet.att.net>
Sitka, AK

Howdy, just surfing HCV sites to see what is knew out there...Visit my site, read MY STORY
Sioux-Z-Q <dooleydo@arn.net>
Amarillo, Texas USA

Hi, my husband has hepatitis C, and I found your site to be wonderfully refreshing and relaxing, peaceful. Thank-you
Rose Harris <hrosanna@hotmail.com>
Mora, MN.

Great site, just found out hvc +. Looking for info and hope.
thanks for the help
jackie <jackie@vcn.co>
wyoming

I'm just finding this website after just finding out I have hep C with cirrhosis. Anyone know of any support groups in my area?
pat smith <patring@delanet.com>
wilmington, DE USA

Excellent place you all have here Thank you, Mike
Paul M Johnson ( Mike ) <MJ22@prodigy.net>
Oak Ridge, Tn. USA

THIS IS MY 3 MONTH ON COMBO TREATMENT UNABLE TO WORK THANKS FOR THE INFO. JUST FOUND SUPPORT GROUP BUT DOESN'T START FOR WEEKS. WOULD LIKE TO CHAT WITH OTHERS ON COMBO HAVE A GOOD DAY!
DEE PAGE <GEMAW@WEBTV.NET>
GRANBURY, TEXAS USA

Joe.. very lovely and informative and inspirational
sybil <sybil@dynanet.com>

my mother and i both have this disease and it is nice to know there is a place we can go and be accepted.
kristin and lori <mabey@lcc.net>
conroe, texas u.s.a.

My son and I both have Hep c and thanks for the info
Janis Morrow <gpjanbilly@webtv.net>
Delton, MI USA

Joe, thank you so much for sharing this work of love.
Sheree <martins@zoomnet.net>
Ohio USA

Joe is a great one. Thank you for the web page.

jen
Jennie <jwhd1@aol.com>
Texas Bill & Monica's

Many blessings to all of you who visit this web. May you find comfort, inspiration, knowledge and friendship here
Cheryl Faye Schwartz <cheryl@bnatural.com>
Bensalem, PA USA